sticking around

“And if sun comes
How shall we greet him?
Shall we not dread him,
Shall we not fear him
After so lengthy a
Session with shade?”

(Gwendolyn Brooks, “truth”)

Trauma. Tragedy. Crisis. Disaster. Gross Injustice. Neglect. Cruelty.

In the immediate moment of each of these, as humans, we are good at launching ourselves into action. We unite, we donate, we speak loudly, we act. We are present in the lives of those in need in part because innately, we want to ease someone’s pain and in part because it feels good to know we have helped.

Flood waters know no justice, they hold no mercy. They devastate without warrant, without restraint, without bias. Unstoppably powerful, all we can do is react to the destruction they deliver.

15 years ago when Hurricane Katrina pummeled the Gulf Coast, and more particularly to me, the city of New Orleans, there was an immediate flurry of assistance. Footage made readily visible the dismantling of the city, the dispersement of a people, the deaths of too many…images scrolled our screens revealing the destruction of property, the rescues of terrified families, the conditions of those stranded in dire circumstances. At first the access to these images and information on television was helpful, but it also simultaneously tore a hole in my heart. So many strangers with no connection to my city also had access to these same images I was seeing and at the same time as me–images that felt so intensely personal–images that fueled commentary which had the ability to be both inspiring and ignorant…empathic and vitriolic.

It felt like a violation. Yet, the truth of those images moved humans of this world to offer aid.

People arrived in the city as soon as it was safe to offer food, assistance, clean water, a shoulder to cry on. Volunteers came in force to rebuild and restore New Orleans as a gift to those who love it as more than simply home. And so many who could not be physically present still sought ways to be helpful through donation, words of encouragement, and other beneficence. My emotions were overwhelmed to see that influx of generosity in those earliest and most devastating of days. But what anyone who has ever experienced tragedy, loss, disaster, or trauma of any kind will tell you is this: what stands out most, are the people who are still willing to help when the news crews have departed but the immensity and difficult days of reconstruction linger. Because the healing isn’t immediate. It takes far longer than the spotlight can shine to fully recover and it is the work of those who stick around even when it is no longer popular that makes the true difference–that makes renewal a reality rather than illusion.

“Sweet is it, sweet is it
To sleep in the coolness
Of snug unawareness.” (“truth“)

And today we are in the midst of a different kind of trauma.

The murder of George Floyd, the visibility of that traumatic footage, the perpetuation of commentary from those who have the ability to inspire or to degrade, brings us to an inflection point. At this moment, as a white woman in America, I can only speak from my experience, from my truth. And this is what I know. It is easy for white Americans to stand up right now and scream “Black Lives Matter.” It is easy today to yell for justice and to demand an end to racism. It is easy right now to pray and to be visible in our outrage. The outrage is and should be universal. I in no way intend to diminish the necessity of everyone speaking out in this way, of being mindful, prayerful, and righteously enraged. I only mean to say that right now, when everyone feels this way in the face of this gross abuse of power–in the face of actions laced with bias that birthed injustice and mercilessness…in the face of these flood waters, we must stand strong…and not just for today, but until all of the work is done. Because today it is popular. But six months from now when people of color are still afraid to walk the streets of their neighborhood or through a park, where will we be then? Will we still have the same volume to our voice? Will we still be willing to engage in the difficult conversations and to call each other out for our bias and our tendencies to languish in our own privilege? Will we be able to admit that no matter how nice and kind we are in this world that doesn’t erase larger systemic issues that lead to the daily dehumanization of our fellow citizens of this world who if I am not mistaken (and here is my Christian bias) were all created by the same God? Will we recognize that while we do not have to be ashamed of being white, we 100% have to step up to work tirelessly to break down the centuries of barriers, vilification, and bias that have been created?

Will we be humble enough to be uncomfortable because for real you guys, that necessary discomfort in the work of restoring justice is minuscule compared to the lifetimes of discomfort brought about by the racism so many of us don’t want to admit still exists in this world.

As a woman, I know how powerful the “Me Too” movement has been and I am grateful for the bravery of those few who stood up and stood out elevating their voice so that I could elevate mine. But in all of my years in this work, there is one truth that I know. Change will not come about with only women using their voices. We require allies from the male population who are not afraid to call each other out in the tough moments…men who are not afraid to recognize that they have acted in ways that have demeaned and demoralized and who are ready to change…men who are willing to share the power of any moment with their female counterparts giving light to their ideas and worth to their being rather than burying them.

A similar truth exists here. This is not a momentary injustice. It wasn’t born a week ago…or a month ago…or even a year ago. This is deeply rooted and will take the efforts of all of us to dismantle. The onus does not fall on people of color to resolve this issue. The responsibility belongs to all of us to listen, to ask questions, to reflect, to understand, to own our actions, to do better, to be better, to be courageous in conversation even when that makes us unpopular. It is the actions of those who are willing to do this work even and especially when the spotlight fades that will help in making a lasting difference.

It is time to crawl out of our pits of privilege that allow us to be angry today and forget next week and to summon the strength it will take to not only face the truth but to help others do the same. It is time to take responsibility for the injustice in this world even if it feels like it isn’t your fault because for real, we all live in the same damn world–restoring justice is the work of us all. The sooner we own that as a common truth as white Americans, the sooner we can get to the work we should have been initiating in a unified way long ago.

It is time we stepped out of our own way and stepped beside our friends of color in this fight. Because the healing isn’t immediate. It will take the work of all of us to make renewal a reality rather than illusion. 

I cannot speak for anyone else, but I am sticking around until the work is finished or my time here is done. I see no other way forward in this life than that.

the clam

“And when the broken-hearted people
Living in the world agree
There will be an answer
Let it be

For though they may be parted there is
Still a chance that they will see
There will be an answer
Let it be”

( “Let It Be”, John Lennon and Paul McCartney) 

My dog, Gingersnap, got out the other day. In the moment of her (apparently much sought after) liberation, she sprinted with the speed of exhilaration, evading capture for far too long and creating quite a caper. As I witnessed her escape and before the fear of potentially losing my sweet (albeit noisy) companion set in, I realized that her fleeing the confines of this house was quite the metaphor for how I believe many of us will feel when finally able to live fully in community again.

Except, I would honestly stay shuttered in this house for another year if somehow it would exonerate my kids and allow them the opportunity to play with their friends again.

I suppose this sounds like the voice of privilege. My kids are healthy. They are cared for and housed and clothed and fed and nurtured every single day. They have a backyard to play in and a safe neighborhood through which they run freely. Believe me, there is not a single moment on any given day where I lose sight of our privilege, especially at this moment in time. But that abundance does not release them from the grip of the emotional impact of this pandemic.

Funny story, when all of this was just a whisper and not yet a vivid reality, it was my hyper-anxious germaphobic child that I was worried about. I just knew this invisible predator of sorts would overwhelm his sensibility and we would be back to sleepless nights wrought with panic attacks. However, while his anxiety has seen an uptick, he knows how to verbalize his concerns and how to ask for help…and he knows how to channel his anxious energy into crafty projects (literally, in the first week and a half of this debacle, he feverishly constructed a cotton candy machine out of materials he could find around the house…don’t ask…it was a long ten days).

Yet, as the days have worn on, it is my younger son, the one who is my heart walking around outside of my body, who seems to be struggling the most. He puts on a good face most days…does his distance learning work, plays soccer in the yard, relishes the opportunity to drink a hot chocolate every morning. But there are other times where he is obviously angry for what seems to be no good reason…where he is constantly complaining of being tired…where he just seems sad. He doesn’t always want to talk about it. He worries about making other people feel badly. I know this because I do the same thing. My family called me the clam growing up because I just held everything in and I see him repeating my history. It is not a good way to go through life.

“I wrote my way out
When the world turned its back on me
I was up against the wall
I had no foundation
No friends and no family to catch my fall
Running on empty, with nothing left in me but doubt
I picked up a pen
And wrote my way out”

(“Wrote My Way Out” Nas, Dave East, Lin-Manuel Miranda & Aloe Blacc)

Thank goodness for his social studies teacher. She has asked him to write a “coronavirus journal” each week as a way to document this moment in history and that has been my only way into understanding where his brain is in all of this. He seems to recognize that it is the only comfortable way for him to get the discomfort and the heartache out into the world…he seems to wield the power of his words effortlessly…and in their wake, he is free for a few days–relieved of their weight.  If I didn’t already fully understand the power of writing, his work in this journal certainly would have taught it to me. Some weeks he has let his comedic personality flow through, but lately, his entries have just been sad.

This was his entry on Friday (he is eleven years old…):

“So, I don’t really know what to talk about today. Today hasn’t been that interesting. All of quarantine has been really boring. I really miss my friends. It’s like I’m living in a hole that I can’t climb out of. It’s like a hole has been dug in me and there are wasps flying around in me all day. People are always saying ‘We will get through this together.’  It sounds good the first few times, but by the millionth time it’s like there is no spirit left in the words. They are supposed to be convincing us, but now it sounds like they are trying to convince themselves.”

If we think our kids are impervious to the trauma of this pandemic, we are blinding ourselves to the complete truth. It is arrogance to imply that because they are kids they have nothing to worry about, no real stress, no troubles. Their whole lives have come to a screeching halt. The adults of this world are struggling to muster the emotional competence to negotiate this crisis, why on earth would children be able to navigate these waters any easier? Their stress is real…their confusion, profound. The impact is vast and beyond what we are able to currently know and that scares the hell out of me–both for my own kids and for the ones that I teach. Yes, kids are resilient humans who tend to be wiser than the adults around them. But we need to pay attention…we need to give credit to the weight of their feelings…we need to honor their experience for being just as difficult as our own…we need to treat them as humans in need…we need to stop and see their truth.

This same sensitive kiddo is preparing to play his guitar and sing in a virtual talent show for school. He decided people needed hope so he is singing “Let It Be.” I mean, he also worships the ground Sir Paul McCartney walks upon, but he knows this song can help people feel better and he wanted to try to make a difference.

Injecting hope into the world despite the “wasps” stinging him on the inside. Maybe he is going to be okay after all?

 

Reset hope

I realized this morning that I haven’t worn my glasses in days. Well, I think it has been days, though honestly, it could be a week or more. I actually don’t remember when I wore them last. In fact, if you asked me for their current location, a reaching guess would be the best I could offer.

And yet, I don’t seem to have missed them…their ever present weight on my face, their incessant reminders of my aging eyes as I begrudgingly reach to remove them simply in order to read my computer screen, their gentle bounce as I jog the neighborhood…a gentle jog of memory for how the world moved when vertigo was a daily friend. I really haven’t missed any of those things…at least not enough to notice their absence.

But, that singular perspective doesn’t tell the whole story because in fact I do miss the presence of the distances in my life that required the glasses in the first place–my students across the classroom from me, ripe avocados from the other side of the produce section that glimmer with the hope of future guacamole, the screen at the gym that reveals my heart rate (in some way confirming that I have in fact worked out, as though the pounding heart and pouring sweat weren’t evidence enough).

Everything these days is in close proximity…my family, the pantry, my backyard, my desk. There is no distance that requires my glasses for clarity, only a distance that is too great for my glasses to clarify. I see my students on my computer screen…I read their words and hear their voices and in some ways they are still very present in my everyday. Yet, the absence of the vibrant richness of their presence marks everyday as a bit emptier than it could have been. This is not summer. This is not vacation. This is a collection of days that were promised and then revoked, without warning. Days etched now with the wispy shadow of what should be. Yet in the midst of this distance, my affection for my profession, for my school, for my community deepens, strengthens fueled by the lens of truth held up by space and time.

Even in these strange and unusual days, when we are sheltered in our homes from an invisible and indiscriminate adversary…when we are separated from people and places and produce (sorry, I miss the grocery store…a lot)…even when we are anxious, afraid, and uncertain…even now, gratitude has a way of unfurling in small moments as the first flower of spring offers hope that despite the desolation of winter, eventually the earth defrosts and new life comes to be.

And I think that has to be where my focus turns…toward the new life that has yet to take shape…the bud, still tightly wound, yet to reveal its beauty. My focus has to be on the gratitude for that moment yet to arrive. I am not diminishing in any way the very real concerns this virus instills. Trust me. I feel them deep within my core. That fear has overwhelmed and frozen my writing for over a week now and borrowed sound sleep from my mind’s vocabulary.

It’s just that I cannot exist in that hopeless fear driven space and expect to be of use to those who need me–including myself. And so, I am simply adding a new lens to the collection. This time, the lens of reset, the lens of renewal, the lens that will allow me gratitude for this pause in life and that will water seeds of hope for the goodness already present and the goodness yet to arrive.

I still don’t know where my glasses are…I’m not entirely sure when I will find them…but my vision feels sharper nonetheless.

(a poem for you in this moment…one that I shared with my students–whose insight was stunning, I might add–take a second to read it if you can…“Today” by Billy Collins)

 

 

u-turn

A temperamental sense of balance and an overly sensitive inner ear don’t make the best flight companions. Fortunately, the only moments of the journey that we tend to be at odds occur during takeoff as the plane climbs in altitude. My brain and my ear cannot seem to resolve their past communication issues and as such, are a bit  fluttery when presented with a challenge beyond navigating the balance challenges of a typical day. Each flight and airport present a unique set of circumstances, but discomfort of some kind reveals itself regardless of place or direction. Last night’s flight home brought forth one of the most courageous conversations my brain and my ear have had to flesh out in a long time.

At first, I was relieved. We seemed to be climbing in altitude slowly which always eases tension by allowing my head to adjust to the pressure changes gradually rather than all at once. And then we made a sort of u-turn. Planes turn all the time. No big deal. I sit just in front of the wing and by a window so my eyes can use the visual to explain the discomfort my head feels.

Last night felt different.

The turn was steeper and tighter and incredibly disorienting. There wasn’t a window that I could look through that could grant a stable visual. There seemed to be no steady point on which to focus, to center myself. Gorgeous pink clouds reflecting the beauty of the setting sun should have been distraction enough, but I simply couldn’t get my bearings and it equated to a terrifying minute or so during which the panic of the vertigo days flooded my system. My mind reeled toward flashes of the worst moments from that time swifter than I could stop it. Before I realized what was happening, my hands were shaking and my breath became shallow. Treacherous, sneaky fast, pervasive. Panic acts without notice and I wasn’t prepared to prevent it from persisting. My guard was down.

Eventually, after the plane leveled out, the pressure in my head did as well. I closed my eyes, inhaled deeply, and reminded myself that, despite the painful memories this u-turn invoked, the discomfort was limited, temporary. Despite that feeling of helplessness in mid air, I was okay–safe, balanced, headed home.  Another inhale, a breath of gratitude. The exhale, a prayer of peace.

I have these u-turn moments from time to time-I feel like in some strange way, in our own ways, we all do. A moment when something triggers my vertigo panic button or rips the stitches that contain my grief and suddenly I am swallowed up. Whether fleeting or lingering, the emotion is disorienting and even when I am surrounded by goodness and love, it can be hard to see it clearly enough…even when I know the feeling will be temporary and I am in charge of its dismantling, it can be hard to find my balance long enough to wait it out.

Yet, inevitably, the moment always levels out, the pressure of the panic subsides, I realize that I am held in love unconditionally-that I am safe, and I breathe. Will the vertigo come back some day? Almost definitely. Will that be awful? Um, probably… I can live with that aspect of my life, I have to. I don’t have to like it and from time to time, I’ll be caught in a bit of a u-turn moment, but this is my lot and with it, I can still do so much.

Inhale, gratitude…exhale, peace.

(Entry 29 in the king cake writing challenge!)

microcosm

The human collective encased within the parameters of the airport possesses all manner of oddities. While this mass of people exists in this singular place for merely a fleeting moment of time, the focus is not on community but more on the individual habits and procedures that will get us where we need to be, when we need to be there, with as little interaction as possible. Skillfully averted eyes and the incarnation of air pods have heightened the already palpable vibe of “don’t talk to me.” We place bags on the seats next to us in the terminal in an attempt to avoid having to sit too closely to a stranger…or maybe just to enjoy some personal space before boarding the plane. Magazines, that so many only ever purchase in the airport, as well as screens of varying shapes and sizes act as blinders, making us appear engrossed in something important that absolutely should not be disturbed. We all meander and move with purpose and intention and with no apparent need for those around us.

Which actually makes reasonable sense in the airport, but I wonder how often we walk through our larger communities in this way–turned completely inward, avoiding conversation and community, focused only on the needs and goals of the self. It feels easier to move through life solo–or at least with a very small tribe. The fewer people who rely on you, who need things, who look to you, who could possibly hurt and be hurt by you, the easier it is to make decisions because the impact feels compact. Yet, no matter how isolated we imagine ourselves to be, or how singular each action feels, no matter how secluded we expect we have made ourselves, ripples go out into the world…for better or for worse.

The thing is this–we were made to be with each other. We were made to associate rather than detach. Sure, life masquerades as simpler when we shield ourselves within a fortress of busy-ness and singularity, but we miss so much in avoiding the intricacies and attachments and beauty of those around us. People are not always easy. Relationships are often uncomfortable. But living in community with those around us constructs scaffolding that holds us accountable while also holding us in tenderness.

The thing is also this–just because we attempt to avoid interaction or just because we deny our place in any given society doesn’t erase our presence. So, consider instead, the power of your smile or a simple thank you or any other basic kindness that possesses the potential to elevate the quality of someone else’s day. Consider instead, that when we look up from our screens and books and busy-ness, there are people, both known and unknown, waiting to be noticed, deserving of recognition. Consider instead the vibrance and richness that could decorate not only our own lives but the world at large if we just took a moment to step out of ourselves and into relationship.

(not sure the day count holds anymore since I’m not writing in consecutive days…but I believe this would be Day 28)

(and also because I seem to have strayed from sharing poetry here…it’s one I’ve shared before but it is perfect for this particular blog…“Gate A-4” by Naomi Shihab Nye)

 

concession

Well, in order to preserve my sanity and that of my family, I’m changing the rules of this blog challenge–but by all means, there will still be king cake at the end. Despite recognizing days ago that this would have to happen, I hesitated to rearrange the challenge at all. In my weird brain, I had convinced myself that I would be letting people down (you know, like the 6 people who read this blog with any regularity–I was worried about them…). And even though I wasn’t really enjoying the writing after 12-14 hour days at school (difficult days at school) and even though I knew I needed to take care of myself first, I couldn’t bring myself to jeopardize the streak.

And then a good friend asked me who made the rules in the first place.

Yep, I made those rules so I could change those rules and it would be just fine. I could give myself a couple of more days off in the week without lessening the value of the work (actually, the work will probably get better). I could, quite simply take care of myself without having to answer to anybody else in doing so. And, if I am being honest, I do not give myself permission to do that often enough. The very same good friend also asked me to list the things that I do just for myself. I could not produce a rich and diverse list in return. Sure I could think of things like working out and writing and my Wednesday night class. But the working out has to happen at 5am at a sacrifice to sleep. And the writing, while most nights I love it, has also been crafted at a sacrifice to my family and to just giving my brain a break. In that moment, I realized a couple of things: First, I need to seek more ways to do things just for myself and (this is critical) not feel guilty for that. Second, I will be a better human for having done so.

So, the Carnival season blog a day challenge rules are changing. Instead of one day off per week, I’m taking three. And if I am traveling for work, I won’t force the issue. If a blog happens, great and if not, also okay. No king cake will be consumed between now and Mardi Gras Day. As long as I continue to maintain a regular writing habit between now and Mardi Gras Day, the king cake will be mine then and not before.

Excited to write with less pressure for a daily requirement. Excited to enjoy the process a bit more. Excited to take care of myself.

(Day 27)

selfish?

I lost control of the remote and all television viewing when I married my husband twenty years ago. The birth of my kiddos only compounded this situation. In order for me to possess the power to decide what I will watch, I pretty much either have to be at home by myself or the last one awake (which is why I’m only on Season 3 of Downton Abbey with so many other seasons of so many other shows in an ever growing queue of  “to be viewed”). And I’m not going to lie, what the people in this household decide to watch remains questionable at best. To justify that statement, I should mention that currently these boys (lead by my husband) are flipping between some station with a guy selling vintage coins and a reality television show depicting people who go around the country in an effort to haggle and then buy other people’s junk. If somehow something else were to be added to the mix, I can almost positively promise it will be the Golf channel.

Riveting, right?

I wish I could say this lineup was an anomaly, except this happens just about every single Monday night with the remaining nights of the week reflecting equally debatable viewing options. Some days my lack of voice in these matters bothers me and pushes me ever closer to ensuring some kind of “she-shed” becomes a reality. However, at this point in my life, I often find myself grateful not to have to make another decision in the day. Honestly, with the way my days have been going, I would be happy not to turn the television on at all. I would be happy to enjoy the quiet, to find some stillness, to enjoy the peace of solitude. A few months ago, while out of town at a conference, I settled into a quiet hotel room where no one needed anything from me and where I fully intended to wield the remote without contest. Except, I didn’t. I didn’t watch a single show. I wrote and read and rested and my sense of well-being was restored.

My days are typically punctuated with noise, chatter, questions, complaints, jokes, laughter, and more. I’m not griping about that because I am grateful for my job, my students, my colleagues and my family. I am only noting that quiet moments in this span of my life are few and far between. I am constantly in a state of problem solving, constantly in response mode, constantly in motion. Spending the last couple of hours before falling asleep for the night in a state of calm, quiet relaxation seems to be a bit of a luxury or even a guilty pleasure. As a mom, those quiet hours do not exist when I am at home, and I struggle to find a means to give them to myself despite knowing that I am a better human when I have had this time to decompress. Life as we live it moves too fast for this kind of pause, yet I live in recognition of the necessity of it.

And so I guess my realization in this is that I need to spend less time frustrated over terrible television, feeling ignored or secondary, and more time placing my own self first and seeking even just a few moments of solitude. Even if that solitude has the ambient noise of someone proclaiming the value of mint condition coins…

(Day 25…I’m tired…I literally typed up my resignation from this challenge…and then erased it and wrote this instead…why don’t I do this blog challenge in the summer for goodness’ sake?!)

Motivation in around 300 words

At first, I thought it was the king cake that kept me motivated. Then, posting each blog on social seemed to hold me further accountable. What could be a more powerful incentive than the forces of friends/family and food?

My students.

Some of my students started reading my blog. And it is just the best validation for why I believe English teachers need to be writing for themselves…and in some way, large or small, sharing that writing. My kids are saying things like “I can totally tell when you are excited to be writing and when you are just doing it because you promised you would. It makes me feel like a teacher-like when you can tell we haven’t done our best too.”

It’s the reciprocity that matters, I think.

They see me working hard and being vulnerable by posting work publicly even when it isn’t my best. And I know better what it feels like to go home exhausted with loads of responsibilities and still have to find a way to sound coherent on the page.

Even better than that, they know me as a writer which is only fair given that I know that side of them so well.

I also feel in a very real way that they will know if I miss a night. I wouldn’t just be letting myself down, I would be letting them down. And that is the accountability that keeps me going. My students traveling this journey with me is far better than any slice of king cake at the end. What we have gained along the way far exceeds that delight!

(Day 23–short entry because, well, I got to chaperone Winter Formal tonight)

acceptance

For what seems like my entire adult life, careless eaters and their subsequent audible mouth noises have rendered me wretched. Crunching, smacking, squishing, gulping…all of it… every muscle within me would tense, while on the outside, I would futilely attempt to withhold visible reaction (though once my shiver pronounces it’s presence, it is hard to mask my irritation). I have no way of explaining the swift development of this distress in any given moment, other than to say it is intrinsic, instinctive. No frustrated thought process exacerbates my reaction and tolerance entirely eludes the grasp of my capabilities.

Despite this aversion in my adult years, I also possess vivid recollection of my mom having to correct me, repeatedly, for smacking when I was a kid. Looking back, I cannot fathom why it took me so long to learn that lesson. Obviously, my manners required refinement, but somehow the sound of my own chewing didn’t seem to deter me. I am not sure when the changeover occurred. I just know that in the same way that I suffer a full body reaction to cilantro when it evades my careful eye and ambushes my taste buds, mouth noises incur complete revulsion.

Despite years of living into this disgust to the point of it worsening, my life turned in a bit of a punishing direction. In the midst of the fury of my inner ear disorder, when it had reached the point of disability, I consented to a surgery that offered no guarantees but did generate hope for restoration. I knew going in that the surgery, whether successful or not, would result in muffled hearing in my left ear as it healed and as the packing inserted during surgery dissolved. I knew a tube would be inserted as well that would also complicate my hearing for a while, but given that my hearing was already complicated, this seemed like a small sacrifice.

A few months after surgery, the surgeon removed the tube and for about three days, my hearing returned to the quality it kept before I was sick…not just pre-surgery but pre-illness. Everything about my life seemed to hold greater clarity in those days-I heard my kids clearly without having to see their mouths moving to decipher their words, my thoughts were uninterrupted by tinnitus, and directionality of sound was restored. The smile on my face in those few days reflected the lightness and joy of my being.

And then the hole the tube tore closed up.

While my hearing remained improved, I quickly discovered that I was also hearing internal noises at a volume not conducive to calm and clarity of thought. Every beat of my heart sent a roar instead of a pulse. Every breath I took, a hurricane in my ear. Every turn of my head, yawn, and stretch accompanied by cracking and squishing–noises we aren’t intended to hear and remains sane. Every word I spoke echoed within.

And also…

Every bite of food I chewed, every sip I took played at full volume and there was no escape, no retreat. All of a sudden, the thing that drove me mad in others became a state of being and no amount of shivering in disgust would resolve the issue. If I wanted to eat and drink (you know, survive), I had to also find a way to manage my disdain for these internal noises. It was hard to explain this situation to others without being greeted with the attempted empathy of “oh yeah, I know what that’s like! Happened to me when I had a cold last year” Not the same. I’ve had colds before that elevated the volume of internal noise. I’ll say it again–not the same…at all.

I wish I could say this surgical consequence brought me new perspective on the patience I should show others before reacting, but it didn’t really. However, it did grant me a realization. Was this situation uncomfortable? Yep. Did it make eating disorienting and difficult? Definitely. But, here’s the thing, I wasn’t dizzy anymore. The tinnitus was gone. I finally functioned in the world, for the most part, like other healthy people (with a few restrictions). I was present with my family and friends. I had been given so much only to be annoyed by these noises that over time, I could learn to live with if I only tried to focus on the positive rather than on the grotesque.

100% effective? Let’s just say, I require reminders:) Just tonight, while attempting to enjoy a piece of pizza, I nearly quit the meal 4 times (literally)  because I just couldn’t take the eating noises anymore. Then I remembered there was a time that just chewing pizza held the potential to incite vertigo. I let my frustration go and I enjoyed the treat.

And I think that is the point. There are so many moments in this life to enjoy when we just step back, let go of the frustration, harness our gratitude and dive into the delight.

(Day 22:) Also, Orange team don’t be mad about the pizza! I promise I ran 4 miles today too!)

flicker

“For some things/ there are no wrong seasons./ Which is what I dream of for me.”

–from “Hurricane” by Mary Oliver

Hope flickers in the darkness.

Yet,somehow, when we need it most, we see everything but that light. We sink into seeing only the misery that surrounds us instead of squinting to see the light of hope in the distance. The choice remains within us to live into hope…to anticipate miracles that may arise in any single moment…to believe that there is more to come because right now is only temporary and each day brings a new promise.

In the toughest times, it is hard to take ownership of that choice.

In the midst of the most difficult days of my inner ear illness, when I thought I would have to quit my job and give up driving…when I thought my hearing would be lost forever and my kids would never remember who I “used to be”…it was in those terrifying days that for the first time in my life, I lost hope. I felt like a burden to all around me and I saw no chance of healing. For the first time in my life, I sank into the darkness and elected to remain there. Anything else felt too difficult, felt impossible. I could see no way out, could find no silver lining, could not understand anything beyond my own suffering.

And all I can say looking back on that is this: in denying myself access to hope, I denied myself healing of mind and spirit. In succumbing to the quicksand of my despair, I cheated myself out of moments, days and weeks of my life. I was waiting for someone else to throw me a life preserver or to reach out a hand and make it easier all the while missing the point that I had the power to save myself. I could not heal my illness, but I could in fact heal my heart.

Rediscovering that flickering light was no easy path to walk. Learning to trust it again took even longer. Walking forward in that light brings rest to my most difficult days now and also brings gratitude for the journey to its reclamation.

(Day 21–I’m exhausted…this is short and not what I had wanted it to become…I suspect a revision of this will turn into a future blogpost)