Tag: coronavirus

patience

Amy Clark2 Comments

I don’t remember myself.

I’ve been sick before. Invisibly ill in insidious ways.

Lonely, as those surrounding me tried to understand, but without experience, had no foundation to allow for true belief in the turns my story had taken. Frustrated, as no one seemed able to resolve my ailments or even to incite a brief remission, a bit of respite, a break. Exhausted, afraid, broken-hearted and broken bodied. All of this. I have been all of this before in the midst of illness and yet despite the array of emotion, I’ve always been able to remember myself…for better and for worse.

The constant specter of who I used to be, what I used to be able to do haunted me without reprieve. I longed for the previous ease of propping up a smile…for the freedoms of frivolity without worry for an unforgiving symptom set…for working out without abandon because I was in charge of this body and we would be fit…for being able to honestly answer “I’m well” when asked how I was doing. I knew who I used to be, what I used to have, what I used to be able to do and I was jealous of her. Constantly. Achingly.

It took years to accept the terms of my new circumstances. To accept that the girl I used to be was still part of who I was becoming rather than extinct. That she was fully aware she was participating in a merger wherein her strength and joy and skills and hope were maintained and sharpened in this new fire faced. She populated my everyday though her life looked different. It took years to own and honor that there is no old me and new me, only me in this moment and I am always going to be in some phase of evolving into who it is I am meant to become…to honor that I still have control over the shades and hues I show and shower. But this process always included recognizing and celebrating who I’ve been along the way. And recently, that has become more difficult.

This battle back against what has evolved into Long Covid is different from all the other times I’ve faced health challenges (and there have been many). This fight has dissolved much of what I knew of myself. My brain is so exhausted and so foggy that I find myself behaving, responding, acting in ways that feel unrecognizable, strangely resistant to careful reflection and observation, interrupted moment to moment with absence of memory for what comes next, but it’s all I have the energy to produce. I find missing the small goodness of the beauty on the horizon, because I am tethered instead to what is currently right in front of me. Don’t look up or around or too far forward or back or you will lose what it is you have to do in this singular moment. Blinders are required but the blindness harbors despair for as missed moments pass, they grow heavy. I feel sometimes as though I’ve become a completely new human without the reference of experience and knowledge of who I was, of who I’ve been, there to guide me. All of my energy is focused on surviving days, getting through them, taking care of all those who count on me as best I can, which is great but I know that for now, I am not enough and also a bit of a stranger, even if only to myself. There are small touches in my manner that have evaporated and all of me is too depleted to attempt any sort of rebirth or refurbishment. Simply getting out of bed and forcing myself to get ready for work is enough to warrant a nap, but there is no time. I have to simply keep taking steps even when I have to fabricate the energy to do so.

And so I proceed having left my former self in the shadows with the hope that she will be waiting for me when I am able to pause, to take care of myself, to fight harder for recovery from something that very few fully understand. I hope that she will be there when it is time to measure this process of becoming. I repeat daily that this is just for right now, but right now exists for an undetermined period of time and there are pieces of my personality that I am not willing to sacrifice to Covid. Intrinsic empathy, generous kindness, careful words and reflection. I don’t need to be the same person I was before. That would be a denial of the experience and all it extolled. I lived it and am living it. Denying it later would make it all worthless. But I need to heal enough to deliver those elemental sparks back into being. That is the day I long for.

Until then, I will keep reminding myself to go slow and that today is not tomorrow yet. Change will come.

I can be patient.

open window

Amy Clark4 Comments

As I sit here to write this, I am sick with Covid and on my seventh day in isolation from my family, my students, the produce section at Whole Foods, and the world at large. My individual existence has taken one giant pause as I work to help my body heal and recover–and yet, the rest of the world carries on with a swiftness that renders me unable to compete. My emotions during this time have spanned the spectrum…at times angry (I’ve been so careful, so cautious, but I work inside of a school so exposure is a daily danger)…at times sad (My youngest texts me regularly from two rooms away that he is sad and misses me and I cannot even offer him a hug), at times joyful (as technology creates opportunities for connectivity even in the face of confinement). But, more than any of these, there has been panic…overwhelming fear facilitating full on panic attacks…more in the last seven days than in the last seven years combined. Not knowing what this virus will exact upon my system or the war it might wage on my family is terrifying to me. Will I be okay? Will the people I love be okay? Will I end up in the hospital, perhaps more alone than I am now? Will this linger? Will I survive?

That last question feels a bit dramatic, maybe. Except, it is the truth of the trek my brain has traveled. So, dramatic or not, it has been my reality. Why? Well, my body often exists in opposition to all I’ve done to care for it. It seems to enjoy testing the limits of my endurance, to place on trial my capacity to persevere. If there is a weird ailment, side effect, strange medical possibility…my body will seek it out hungrily…voraciously…fervently. What sounds like hyperbole, trust me, is not entirely such. I am exceedingly kind to my body, feeding it well, keeping it fit, all the things–yet it persists in rebelling. Vertigo. Unrelenting Migraine. Hearing Loss. Shingles Induced Nerve Damage. This list goes on. And so, I’ve come not to trust this body to behave itself, to follow the rules, to exist within the bounds of normalcy. And so, yes, my panic is a result of a lifetime battle with anxiety, but also as a result of not ever really knowing what my body’s next trick will be. And this, as well as concern for compromised members of my family and community, is why I’ve been so careful, so cautious, even when others thought it ridiculous. Yet, here I am anyway.

So, I’ve exerted as much energy fighting the anxiety and the frustration and the loneliness and the anger as I have ridding myself of this virus because those emotions will not be willing guides to wellness. And so I’m consciously making a list of positives (because, annoyingly, for better or for worse, this is what I do…):

  1. I’ve learned how to be dependent on others when needed without feeling guilty and my kids are learning the freedom that is carried by independence as they learn to cook some basics for themselves (their poor father is left to clean up their messes, but baby steps-at least they are cooking!).
  2. I’ve become dedicated to self care (because I can’t really care for anyone else from isolation): I am setting better boundaries instead of always people pleasing; I painted my toenails; I am stretching every morning; I am taking all the vitamins; I am binge watching “The Crown” simply because I enjoy it; I’ve opened and climbed out of my bedroom window daily to enjoy fresh air and a peaceful moment outside; and I am granting myself permission to rest (maybe it’s the truce my body’s been fighting for?)
  3. I’ve been showered in love and support and errand running and food delivery and checking in. Friends and colleagues and family have become beacons of hope and deliverers of joy not just to me but to my whole household. And all the praise to my resilient husband who is brilliantly rising to the challenges of running the show without complaint…and whose ceaseless entertainment of our teenage/pre-teenage boys has helped them to feel less afraid while mom is sick.
  4. I’ve discovered a new reading spot! Extra time alone in my room has equated to turning a chair to face the window to the backyard. Peaceful, lovely, perfect. It has been awaiting discovery and I’ve been too busy to see it.
  5. Stillness.

I opened my writer’s notebook today and the last time I had written, ironically, was in thoughtful response to Medora C. Addison’s poem, “The Days to Come“. Rereading it brought me further encouragement…especially the last stanza:

“So shall the days to come be filled with beauty,/Bright with the promise caught from eastern/skies;/So shall I see the stars when night is darkest,/Still hear the thrush’s song when music dies.”

Which also made me think of Wordsworth’s “I Wandered Lonely As a Cloud” when he writes, “For oft, when on my couch I lie/ In vacant or in pensive mood,/ They flash upon that inward eye/ Which is the bliss of solitude;/ And then my heart with pleasure fills,/ And dances with the daffodils.”

Which called to mind Ada Limon’s “Instructions on Not Giving Up” — “Patient, plodding, a green skin/ growing over whatever winter did to us, a return/ to the strange idea of continuous living despite/ the mess of us, the hurt, the empty. Fine then,/ I’ll take it, the tree seems to say, a new slick leaf/ unfurling like a fist to an open palm, I’ll take it all.”

Which brought me to David Wagoner’s poem, “Lost,” —“…Wherever you are is called Here,/ And you must treat it as a powerful stranger,/Must ask permission to know it and be known.”

Poetry often restores my perspective and brings balance amid whirls of chaos in a world of concern–sort of in the same way climbing out of my bedroom window and into fresh air has restored my spirit in these days of isolation. Today, poetry offered bread crumbs on the path out of the wilderness of this illness. But there is more wilderness out there for the world is not absolved of pandemic simply because I’ve encountered it.

We are all weary warriors these days. I get it. I do. But this reality continues to find new ways to make its presence felt…deeply. So it is up to us to remember that all the hope offered in these poems is something to cling to as we continue to make sacrifices, small and large, to prevent others from facing the uncertainty and danger of this invisible instigator. We need to make visible our fortitude moving forward; we need to live in love of our neighbor, taking care to take care. It is the only way forward I can find. It is a path that will be briefer with company, for together we will shine a light toward better and healthier days far more brilliantly than apart.

The window is open. I am hopeful.

the clam

Amy ClarkLeave a comment

“And when the broken-hearted people
Living in the world agree
There will be an answer
Let it be

For though they may be parted there is
Still a chance that they will see
There will be an answer
Let it be”

( “Let It Be”, John Lennon and Paul McCartney) 

My dog, Gingersnap, got out the other day. In the moment of her (apparently much sought after) liberation, she sprinted with the speed of exhilaration, evading capture for far too long and creating quite a caper. As I witnessed her escape and before the fear of potentially losing my sweet (albeit noisy) companion set in, I realized that her fleeing the confines of this house was quite the metaphor for how I believe many of us will feel when finally able to live fully in community again.

Except, I would honestly stay shuttered in this house for another year if somehow it would exonerate my kids and allow them the opportunity to play with their friends again.

I suppose this sounds like the voice of privilege. My kids are healthy. They are cared for and housed and clothed and fed and nurtured every single day. They have a backyard to play in and a safe neighborhood through which they run freely. Believe me, there is not a single moment on any given day where I lose sight of our privilege, especially at this moment in time. But that abundance does not release them from the grip of the emotional impact of this pandemic.

Funny story, when all of this was just a whisper and not yet a vivid reality, it was my hyper-anxious germaphobic child that I was worried about. I just knew this invisible predator of sorts would overwhelm his sensibility and we would be back to sleepless nights wrought with panic attacks. However, while his anxiety has seen an uptick, he knows how to verbalize his concerns and how to ask for help…and he knows how to channel his anxious energy into crafty projects (literally, in the first week and a half of this debacle, he feverishly constructed a cotton candy machine out of materials he could find around the house…don’t ask…it was a long ten days).

Yet, as the days have worn on, it is my younger son, the one who is my heart walking around outside of my body, who seems to be struggling the most. He puts on a good face most days…does his distance learning work, plays soccer in the yard, relishes the opportunity to drink a hot chocolate every morning. But there are other times where he is obviously angry for what seems to be no good reason…where he is constantly complaining of being tired…where he just seems sad. He doesn’t always want to talk about it. He worries about making other people feel badly. I know this because I do the same thing. My family called me the clam growing up because I just held everything in and I see him repeating my history. It is not a good way to go through life.

“I wrote my way out
When the world turned its back on me
I was up against the wall
I had no foundation
No friends and no family to catch my fall
Running on empty, with nothing left in me but doubt
I picked up a pen
And wrote my way out”

(“Wrote My Way Out” Nas, Dave East, Lin-Manuel Miranda & Aloe Blacc)

Thank goodness for his social studies teacher. She has asked him to write a “coronavirus journal” each week as a way to document this moment in history and that has been my only way into understanding where his brain is in all of this. He seems to recognize that it is the only comfortable way for him to get the discomfort and the heartache out into the world…he seems to wield the power of his words effortlessly…and in their wake, he is free for a few days–relieved of their weight.  If I didn’t already fully understand the power of writing, his work in this journal certainly would have taught it to me. Some weeks he has let his comedic personality flow through, but lately, his entries have just been sad.

This was his entry on Friday (he is eleven years old…):

“So, I don’t really know what to talk about today. Today hasn’t been that interesting. All of quarantine has been really boring. I really miss my friends. It’s like I’m living in a hole that I can’t climb out of. It’s like a hole has been dug in me and there are wasps flying around in me all day. People are always saying ‘We will get through this together.’  It sounds good the first few times, but by the millionth time it’s like there is no spirit left in the words. They are supposed to be convincing us, but now it sounds like they are trying to convince themselves.”

If we think our kids are impervious to the trauma of this pandemic, we are blinding ourselves to the complete truth. It is arrogance to imply that because they are kids they have nothing to worry about, no real stress, no troubles. Their whole lives have come to a screeching halt. The adults of this world are struggling to muster the emotional competence to negotiate this crisis, why on earth would children be able to navigate these waters any easier? Their stress is real…their confusion, profound. The impact is vast and beyond what we are able to currently know and that scares the hell out of me–both for my own kids and for the ones that I teach. Yes, kids are resilient humans who tend to be wiser than the adults around them. But we need to pay attention…we need to give credit to the weight of their feelings…we need to honor their experience for being just as difficult as our own…we need to treat them as humans in need…we need to stop and see their truth.

This same sensitive kiddo is preparing to play his guitar and sing in a virtual talent show for school. He decided people needed hope so he is singing “Let It Be.” I mean, he also worships the ground Sir Paul McCartney walks upon, but he knows this song can help people feel better and he wanted to try to make a difference.

Injecting hope into the world despite the “wasps” stinging him on the inside. Maybe he is going to be okay after all?