Month: October 2020

Anticipation

Amy ClarkLeave a comment

Having dealt with chronic illness for the last 8 or 9 years, one of the messiest mental mud holes I needed to dig myself out from existed in a very simple sentence starter…which existed in variations of itself but always lead to the same deleterious effects. It always went  something like this: “Back when I  could…” or “The old me could have…” or “There was a time in my life when _____ was possible”. The trouble with these statements emanates from their constant glance backwards which blinded me to my current truth. And maybe that was my mind’s ulterior motive. If I was always idolizing and gazing back at the “old me”, then the current version of myself was only a temporary imposter. I didn’t have to accept this new human with her new limitations, in her new situation. She was a lesser version of old me and I didn’t really like her very much. Her life seemed less than the one I had been working so hard for so long to create. I wanted more. I wanted what I felt I deserved.  I looked to every outlet that might offer healing because this would not  (NOT) be what defined my existence for the rest of my life. This was a “right now” scenario and I would fix what people told me could not be fixed. I tried acupuncture,  chiropractors, physical  therapy,  vestibular  rehab, essential oils, neuro-otologists, audiologists, oral  surgeons, dentists (this list  goes on for a while, you get the picture). And while I might find relief, no one held the cure…the magic potion that would restore old me and extinguish new me. I felt I had tried everything to heal myself.

But sometimes…

…we have to look within first.

One day, in a moment of defensiveness, I told a friend,  “I have a neurological and inner ear disorder; I am hearing impaired. So what?!”  And it was one of the most freeing moments of my entire life.

I had said it.

Out loud.

In the world.

For someone else to hear.

I had spoken the truth that I had been working so furiously to deny and to walk away from. In that moment, I began to nurture acceptance rather than denial. In that moment, I began to slowly and steadfastly heal myself rather than futilely and frantically try to eradicate my disorder. The path toward acceptance possesses an inordinate number of thorns and there is no map to navigate it well. It requires resilience and dedication and also, as I came to learn, anticipation of who I was becoming rather than disappointment over who I had lost. I did not need to mourn that girl who could do some stupid number of burpees in two minutes…I did not need to mourn the adventures she would never seek (because let’s face it, “adventure” was never really my thing anyway)…I did not need to mourn any of it because she was still a part of me and together, we were becoming someone stronger, someone more beautiful, someone who despite limitations still had plenty to give to this world.

And so in anticipation of who I was becoming, I fought harder.

As 2020 wears on and I feel like so much in this world is changing and shifting, I once again find myself gazing backward. “Remember when we could…” “Remember when we didn’t have to…” “Remember the days before…” Of course we all remember all these things, they are a part of us and our stories. And for a substantial piece of our lives they dictated our narratives for us. They are not lost forever, though, just in a holding pattern of sorts…wrapped in bright paper waiting for us to unwrap them again when it is safe and maybe with the newfound gratitude we are all bound to feel for what was once just the everyday.

I  find myself making this note in my notebook at school regularly: “Anticipate who you are becoming in all of this”  It is a necessary reminder when the work of reimagining school on a regular basis grows exhausting and frustrating. It is a necessary reminder when I decide how I will  react or respond to those around me at work, at home, in my community. It is a necessary reminder that this is my story and I am not a static character. I am dynamic. I am changing. And I can shape that change and my attitude about it.

Opening my mind and my heart to accepting myself, presented some of the toughest work I’ve faced…and that work doesn’t end, maybe not ever. Some days issue considerable challenges while others tender feelings of accomplishment and joy. Regardless, all the days are situated in anticipation of who I will become on the other side of the struggle and what work I can do in the moment to make that person a better one than she is today.

Neither a neurological disorder nor pandemic can change that…unless I allow for it.

All you need is shade

Amy ClarkLeave a comment

“I’d  like to be  under the  sea

In an octopus’s  garden  in the shade”

(The Beatles)

Imagine…

It is a beautiful but unseasonably warm spring day in a time before music festivals had been extinguished by the blight of pandemic. It is a day full of food and music and joy and laughter…and sweat…so much sweat. As the day draws nearer to its closing, you stand amid what seems an endless sea of humanity in anticipation of the headlining act, and in that moment, you realize that under the oppression of the heat you are faltering.  A  little  shaky, a little sick, and in need of relief, you glance skyward in hopes that even a single cloud might be dancing toward the sun to offer a brief respite. Only, there is not a cloud to be found and a bit of panic starts to settle in because you have convinced yourself that in fact you cannot survive the show without some kind of shade. Suddenly, there are too many people around. Suddenly, you are questioning your decisions–why didn’t you wear a hat…why didn’t you buy an extra bottle of water…why are you even still standing here in this misery when you could be at home, cool and comfortable…why does no one else seem bothered by this?

But then the show begins…the crowd roars as the first few chords resonate…

…and everything shifts.

As though suddenly inoculated with protection against the heat,  you find yourself relinquishing the internal panic in favor of the auditory peace of the moment.  

Washed over, baptized if you will, by the waters of this magical, musical oasis, you are            no longer languishing, but living.

You are no longer ailing, but alive.

The temperature has not changed.

The circumstances are nearly identical to what they were just moments before.

But in the shade of the music, it is all bearable and you can continue in spite of it.

Not only that, but you can find enjoyment in the midst of what was misery.

~~~~~~~~~~~~

Early in our days of life at home not so many months ago, I found myself reaching out to known places of comfort. Only, as was also true of the world, what I thought I knew, no longer carried weight. I could not focus long enough to read a page of any of the books in my many stacks of “to be read” without swiftly realizing that in fact I had retained nothing and had to reread the page…again and again, until I finally put the book to the side in frustration. I  blamed the books for a while, assuming that they just didn’t suit me, before realizing that the books were innocent and it was my overwhelm that was to blame. In the face of not being able to escape into fictional worlds, I began countless blogs in an attempt to at least log the truth of my own reality, but I lacked the stamina to see any of them through to completion. And so I turned to exercise, but that too looked different at home–alone, without my friends and the benefit of peer pressure to drive my intensity. This list of “Amy’s Pursuit of Peace” goes on for quite a while and it always seemed hampered by the ever present worry of ensuring my family was at the very least “okay” as well as the constant stress of running and reimagining school from home (and also cooking…endless cooking).

It seemed every place I turned in search of shelter only tossed me deeper into the desert. No effort made seemed enough to construct substantial enough shelter from the ever brewing storms brought on by pandemic life at a time that was also marked by violence in the face of a courageous symphony of voices crying out for overdue racial justice and change…by a country defined by its division…by a litany of natural disasters unfurling their fury as though all the turmoil we felt on the inside suddenly took form in our weather. Smoke clouded vision and smothered breath; flood waters rose leaving trademark ruin in their wake; winds whipped, tearing trees and towns to pieces.

And yet, we had to persist. It was the only way to survive–fight the fatigue and carry on even when you think the next best step is too much. There was little rest, not enough relief, and the idea of a true shelter to shield us from it all became nothing more than a mirage as I stumbled through the heat longing for an oasis.

And then, one day I was walking in my neighborhood (a newfound point of peace in the midst of my surrounding mayhem) and my music was on shuffle because in a world confined to mundanity of home, a little surprise adds color to the day. The Beatles’ “Octopus’s Garden” came on and I had to smile.

“I’d like to be under the sea
In an octopus’s garden in the shade
He’d let us in, knows where we’ve been
In his octopus’s garden in the shade

I’d ask my friends to come and see
An octopus’s garden with me
I’d like to be under the sea
In an octopus’s garden in the shade”

I mean, at first, yes, it was just delightful to imagine this garden with its caretaker who “knows where we’ve been”, and the thought of my friends being able to be there with me when we had spent so much time apart was lovely. But then I realized that in seeking full on shelter, I was actually entering a labyrinth of frustration. I had been asking for too much in desiring something that would repel the truth of the world and keep me safe inside while it happened around me. Impervious protection was not truly the goal. It would have summoned comfort, sure, but it would have also encouraged weakness rather than inspiring strength.

What I really needed instead was a little shade. A brief break to regain my strength. And even if the comfort of shade would not produce itself in obvious ways, I had to seek it out in unexpected places (an octopus’s garden, if you will).

I think we are all pretty uncomfortable right now and for lots of really good reasons, you know? It is just a hard time to be human in this world. There are no immediate cures for the myriad ills we face and in the middle of the desert, with not a cloud in the sky and no true waters of restoration in sight, shade is what we must seek and also create to get us through. My tiny pauses of peace in the shade would not be found in the usual places because the world is not its usual self. I had to initiate invention and be bold in seeking and recognizing the small moments that allowed me to catch my breath so I could be emboldened to face the next moment of struggle. I had to plant my  own trees under which I could sit from time to time to regain myself and my well being…under which I could sit from time to time to remember that even though my circumstances have not changed, there is still joy to be found and love to share.

It takes energy to create shade that will give life. And energy can be hard to muster the longer we endure.  I am trying to remember to name my shade when it is present, to rest beneath it and to recover and in my rekindled strength, to then turn my gaze away from myself and toward extending shade to comfort those around me. Because that is how we will truly survive. Selflessly together. In order to have the determination to reach the true oasis of renewal on the other side of this desert of tumult, we have to be in this with each other, for each other. We won’t all get there at the same time, but if we take comfort in the shade we create and find and share, we will all get there eventually.