patience

I don’t remember myself.

I’ve been sick before. Invisibly ill in insidious ways.

Lonely, as those surrounding me tried to understand, but without experience, had no foundation to allow for true belief in the turns my story had taken. Frustrated, as no one seemed able to resolve my ailments or even to incite a brief remission, a bit of respite, a break. Exhausted, afraid, broken-hearted and broken bodied. All of this. I have been all of this before in the midst of illness and yet despite the array of emotion, I’ve always been able to remember myself…for better and for worse.

The constant specter of who I used to be, what I used to be able to do haunted me without reprieve. I longed for the previous ease of propping up a smile…for the freedoms of frivolity without worry for an unforgiving symptom set…for working out without abandon because I was in charge of this body and we would be fit…for being able to honestly answer “I’m well” when asked how I was doing. I knew who I used to be, what I used to have, what I used to be able to do and I was jealous of her. Constantly. Achingly.

It took years to accept the terms of my new circumstances. To accept that the girl I used to be was still part of who I was becoming rather than extinct. That she was fully aware she was participating in a merger wherein her strength and joy and skills and hope were maintained and sharpened in this new fire faced. She populated my everyday though her life looked different. It took years to own and honor that there is no old me and new me, only me in this moment and I am always going to be in some phase of evolving into who it is I am meant to become…to honor that I still have control over the shades and hues I show and shower. But this process always included recognizing and celebrating who I’ve been along the way. And recently, that has become more difficult.

This battle back against what has evolved into Long Covid is different from all the other times I’ve faced health challenges (and there have been many). This fight has dissolved much of what I knew of myself. My brain is so exhausted and so foggy that I find myself behaving, responding, acting in ways that feel unrecognizable, strangely resistant to careful reflection and observation, interrupted moment to moment with absence of memory for what comes next, but it’s all I have the energy to produce. I find missing the small goodness of the beauty on the horizon, because I am tethered instead to what is currently right in front of me. Don’t look up or around or too far forward or back or you will lose what it is you have to do in this singular moment. Blinders are required but the blindness harbors despair for as missed moments pass, they grow heavy. I feel sometimes as though I’ve become a completely new human without the reference of experience and knowledge of who I was, of who I’ve been, there to guide me. All of my energy is focused on surviving days, getting through them, taking care of all those who count on me as best I can, which is great but I know that for now, I am not enough and also a bit of a stranger, even if only to myself. There are small touches in my manner that have evaporated and all of me is too depleted to attempt any sort of rebirth or refurbishment. Simply getting out of bed and forcing myself to get ready for work is enough to warrant a nap, but there is no time. I have to simply keep taking steps even when I have to fabricate the energy to do so.

And so I proceed having left my former self in the shadows with the hope that she will be waiting for me when I am able to pause, to take care of myself, to fight harder for recovery from something that very few fully understand. I hope that she will be there when it is time to measure this process of becoming. I repeat daily that this is just for right now, but right now exists for an undetermined period of time and there are pieces of my personality that I am not willing to sacrifice to Covid. Intrinsic empathy, generous kindness, careful words and reflection. I don’t need to be the same person I was before. That would be a denial of the experience and all it extolled. I lived it and am living it. Denying it later would make it all worthless. But I need to heal enough to deliver those elemental sparks back into being. That is the day I long for.

Until then, I will keep reminding myself to go slow and that today is not tomorrow yet. Change will come.

I can be patient.

wonder

Lately, my migraine life has had a reductive impact on my exercise life…like walking my neighborhood is really all I can do without negative effects. I mean, some days are pretty golden and I can get away with a HIIT workout or some TRX work without too much residual discomfort, but those days are becoming more and more rare. But this new walking habit is not without benefit (beyond the physical well-being bit). There is a freedom offered in these walks–they belong solely to me, a rare moment in time where I act just for myself. I determine my path, my playlist, my distance, my pace. I don’t need to weigh the opinions of others. I don’t need to compromise with anyone else. I don’t need to negotiate with or listen to anyone other than myself. It is a step toward solitude, toward peace, toward wholeness.

And today, it was a step toward reawakening wonder.

We have this glorified drainage ditch running through our neighborhood…my kids call it a “creek” but I feel like that term just transforms their exploration of it on summer days into something a bit more adventurous–I mean, come on, who wants to say, “Hey mom, can we go check out the drainage ditch?” Words do matter and who am I to deny their careful work with connotation?! On recent walks, this “creek” (I’m just going to stick with the positive nomenclature of my kids here), has been pretty dry and even a little musty. Without the nourishment of rain for the past several days and even weeks, the creek was losing its richness and its beauty was waning(yep, the drainage ditch too can be beautiful). The creek bed was still there, patiently awaiting renewal in the natural cycle of things, but the deprivation on the path to getting there was taking its toll.

And then, after withholding its gifts for so many days, the rain paid a long awaited visit.

As I was walking today through that rain, I heard a noise outside my earbuds as I neared the creek. At first, I thought a car was coming up behind me and so I glanced around to be sure. Not a moving vehicle in sight (not many care to be out and about on a rainy Sunday). Then it struck me. What I heard was not a car, rather it was rushing water swiftly running down rocks and filling up the creek–almost as if it could not get there fast enough. They cycle of hardship was ended…patient endurance, rewarded with rebirth.

It was beautiful and weirdly wondrous at the same time.

In a time when so much feels lost…when we feel so without, so lost…to witness renewal in that way, well, it restores a bit of faith that our dried out, musty selves will one day (even if it is later rather than sooner) be met again by that which makes us whole.  Even in dormancy there can still be the expectation of revival and in that time of waiting, there can even be joy. And in the stillness of that hope (okay, stillness while walking a 14 minute mile…), I thought of Mary Oliver’s poem, “Song For Autumn” and how in it she offers fresh perspective on what we think of as the hibernation of nature’s beauty in the fall.

“Don’t you imagine the leaves dream now

how comfortable it will be to touch

the earth instead of the

nothingness of the air and the endless

freshets of wind?…”

Maybe the creek appreciated the rest, the time to itself, the solitude within which to appreciate the pause and the chance to just be? And maybe its reunion with the rain was even sweeter for the time without?

Maybe I am just a swoony hopeful optimist who seeks answers in poetry and nature for that which seems without solution?

But, a spark of joy was ignited inside my heart and in these days, that spark is good enough for me.